Tuesday, August 10, 2010

when things are better....


video

So i think im angry now....ok i know i am.
Thats a video from over a year ago....and i guess i thought that id be satisfied if things just got a little "better". but im not.

I feel pretty stupid saying it but its been a while now that things are "better" and im starting to notice things I didnt... actually its more like things I couldnt notice before. It started a couple months ago...it was just a thought....its hard to explain but I started to stop being happy that I can finally lift things and walk without getting tired and I started getting mad! I mean is it my life now that being able to walk is something I should be grateful for?! Dont get me wrong...im grateful....you'll never know the feeling unless youve spent a year on the couch but really!??

Im 26.....and for 3 YEARS ive been trying not to die. So is that it? Is me just being alive enough?
I dont think so anymore. I know it sounds weird but i started college at 17 and ive watched people graduate from high school...then from university...then get jobs...all while my body is messing up its ONLY job... i mean while everyones moving forward my stupid body is having a hard time just working properly! so.....as you can see......im angry now.

Ive also started noticing the things ive lost. Yes I survived cancer TWICE.....but now that im alive.....I cant run anymore..... for the rest of my life I cant run...seriously?

I know im ranting...ive probably ranted like this before and not noticed....but im feeling this everyday now and ive figured out something. I feel alone. Actually my wife and I...we feel alone.

We've changed everything to accommodate this disease....but ive started to notice that we're the only ones.....thats not much of a support system if you think about it....


so for now... i guess im angry.


1 comments:

  1. hi nima,

    i read your post this morning and have been thinking about it all day. i know you don't know me, and just so i don't sound like a complete stalker - i came across your blog a few months ago via saman's blog (i knew her when we were children in malawi). i hope you don't mind having a virtual stranger commenting - but i figure blogs are, afterall, about connection.

    i can only imagine how you must be feeling and being angry makes a lot of sense. but...just so you know, as much as you must feel alone, you definitely do have people who care so much - your wife no doubt being the first. and although you not being able to run totally sucks, you not being able to breath would definitely suck much much more. running is overated anyways ;)

    you and your wife are in my thoughts and prayers and i really look forward to your next posts.

    hoping that tomorrow is better than today!
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